I got my craft on for the ladies in my family this Christmas. The gifts are hidden in these homemade fortune cookies...what're you getting? I'm not tellin'!
Anyway, I'm linking these to the craft challenge for the month on Lil' Betty's Blog--enjoy!
Shortly after his 20 week ultrasound Samuel Dean Thompson was diagnosed with a heart defect known as HLHS (Hypoplastic Left Heart Syndrome). In patients with HLHS the left side of the heart is severely underdeveloped and not able to function. The left side of the heart pulls oxygen rich blood from the lungs and distributes it to the rest of the body, with the loss of the left side babies usually have a week or less to live. We were presented with 2 treatment options, a heart transplant or a series of 3 heart surgeries. We chose the surgeries because the thinking is that it is better to make due with the heart you have rather than replace it, if at all possible. The first surgery, which is often called the Norwood procedure, occurred on September 12th. He did wonderfully and recovered better than anyone could have hoped. The medical team couldn't stop saying how they hadn't seen a Norwood recover as well as he did in such a long time. We got home from the hospital on October 26th. We were home for nine days when we went into children's for a routine check up. It was then discovered that his heart function had drastically decreased. We were admitted that night with the plan to administer treatment to get his function back to where it was. Unfortunately the treatment was unsuccessful and the only option left for him was to have a heart transplant. He was placed on the transplant list on December 1st at the highest priority. We are now patiently waiting for a heart to become available that will suit his needs. We maintain the hope that someday through all of this he will finally have a working heart, and the potential for a healthy life.Currently he is at Children's undergoing a process designed to weaken his immune system so that it is able to take a heart transplant without rejecting it, because currently he could only receive 3 out of 100 hearts, and that is assuming they are the right size.